Saffy was anonymously featured in a medical journal
article published in the February 2004 Journal of Pediatric
Hematology/Oncology. The abstract is reproduced below, and
it can be viewed
online. Due to copyright reasons, we haven't reproduced the
entire article, but you can
email Alec for more information.
Congenital Infantile Hepatic
Hemangioendothelioma Type II Treated With Orthotopic Liver
Journal of Pediatric Hematology/Oncology. 26(2):121-123, February 2004. Walsh, Rowan MD; Harrington, John MD; Beneck, Debra MD; Ozkaynak, M.
Abstract: The authors describe a 10-week-old girl
with infantile hepatic hemangioendothelioma who initially presented with
difficulty feeding, hepatomegaly, and multiple hemangiomas of the skin.
Six weeks of steroid therapy and 2 weeks of chemotherapy failed to
produce clinical improvement. The patient underwent split liver
transplantation. A definitive diagnosis of hemangioendothelioma type II
was made. Imaging studies cannot differentiate between
hemangioendothelioma and angiosarcoma. Treatment modalities for this
condition remain unclear. The patient continues to do well.
Saffy was prominently featured in an article about
transplantation in the September/October 2003 issue of Your Health,
an English-language magazine published from Dubai,
United Arab Emirates. To
the left is Saffy's picture in the Table of Contents.
A picture of Saffy and her surgeon in the Your Health
Your Health also included "Saffy's Story" told
from Jill's perspective.